Patient Stories

Personal stories can be inspiring, enlightening, and enjoyable. If you would like to share your member story to inspire others, please email it in word format to We reserve the right to edit for clarity and brevity.


My struggles to get a diagnosis and treatment – Anne

My name is Anne Henry, I am 47 years old and was diagnosed with Lipoedema in Aug 2017 around 30 years after I first noticed signs that my body wasn’t quite the same as other girls the same age. Within those 30 years I have visited my GP surgery on many, many occasions and seen lots of different GPs. When I mentioned that my legs were painful to touch and very swollen, I was always given the same standard answer “you need to lose weight and exercise more […]

My Journey to the Lipoedema UK Conference – Liz

Travel with Lipoedema can be very challenging. The main reason I was travelling was to attend the Lipoedema UK 2014 AGM and conference, in London. It was a bit scary for me as I hadn’t been into Central London since I was a child, and certainly had never had to find my way about on a mobility scooter […]

My Lipoedema Legs – Sandra

I have only recently discovered that I have Lipoedema. Initially I was shocked and I didn’t want to know anything about it. I then became angry, so angry that I had believed for 40 years that I was a greedy, fat person who had created such large and ugly legs. […]

Glimmer of Hope – Annie

I just wanted to say how relieved I feel to have discovered Lipoedema UK. I actually feel a glimmer of hope for the first time since my lipoedema was diagnosed. I had breast cancer 5 years ago and have undergone two operations, chemotherapy and radiotherapy and am still having regular check ups. However, although having […]