Simply, campaigning is doing something so that a change takes place. For example making a politician aware of lipoedema so that they ask questions about lipoedema services and support service improvements.

You can campaign by sending a letter or an email, by contacting local organisations and requesting or organising local meetings or events. They are all useful ways of increasing awareness and bringing about change.

Get more details and help with writing to your MP.

Personal stories are powerful; they are memorable and people react to them. If you would like to share your story with us to see if we can use it as a case study in our campaigns and/or on our website, please contact us at


Finding contact details for representatives and organisations:



Local council 

National Assembly for Wales 

Northern Ireland Assembly 

Scottish Parliament

London Assembly

European Parliament (MEPs)